I developed a lasting friendship with one of those exceptional women. She was attractive, an excellent scholar and member of the debate team with an acerbic wit. She could shame Einstein with her extensive vocabulary, often leaving me sneaking a look in the dictionary after a conversation. It was a rare evening when I could win a game of scrabble. And not once did I suspect she would be diagnosed with early onset dementia caused by Alzheimer's in her 50's and slowly become a totally different person.
In my mother's case, I expected that by 101, she would have some confusion but nothing prepared me for the fear and anxiety that not knowing created for her. After 5:00 in the evening my mother would start to get anxious. She worried about getting home in time to fix dinner even though she was home and hadn't been able to cook dinner in years. She was worried where my father was even though he had been dead for over 25 years. Lengthy explanations to correct her thinking only made the situation worse.
I learned to listen for the common denominator of her concerns. All of them had to do with strangers verses family, anxiety versus security, fear versus safety. Home meant being with people she recognized. Fixing dinner was the way she showed her loved. Wondering the whereabouts of my long dead father told me she needed to feel loved with a reassuring hug. The less said the better. As words failed, my mother developed a heightened ability to read my facial expressions and body language. Smiling into her eyes, holding her hand and putting my arm around her spoke to her in a way words no longer did. I had to enter into her world since she could no longer function in mine.
Antique St. Anthony Shadow Box |
St. Anthony, the Patron Saint of Lost Items, has gone beyond the call in helping find lost grocery money hidden in the dry dog food bag, a phone hidden in a shoe box and placed in the freezer, keys wrapped and rubber banded in layers of paper towels put in the trash, hearing aides planted in a flower pot and on and on. Sadly, the only thing St. Anthony hasn't been able to help find is a lost mind.
St. Rita in Reclaimed Shrine from Chris Hart Studio |
St. Jude, the Patron Saint of Lost Causes, is the saint to pray to when Alzheimer's seems impossible and the only answer seems to be no answer, when everything points to hopelessness and solutions seem nonexistent. St. Jude helps us shoulder the burden and reminds us to let go of trying to control the uncontrollable nature of Alzheimer's. Once you put your faith in St. Jude, he can clear the path for us to accept that Alzheimer's has a life of it's own, that "unexpected" is its middle name and whatever happens was meant to be.
When I visited my dear friend last week, she amazed me with memories of our college days. She could remember the outfit I wore on a blind date in the 1971, the name of the building where the college "mixers" were held and the reading list from the English 101 class we had together, all details long forgotten to me. But I still know what I wore yesterday, I can remember what I ate for lunch today and I know what a key is used to for. My friend does not. The saints are there to help us both.
All you have to do is remember to pray.
Hi Chris...I knew you were big on saints but had no idea you could speak/write of them so eloquently. This writing on dementia/Alzheimer's was very special as my old boss died a few years back after suffering with it for about 10 years. I think I am thankful I was not physically around him to see the deterioration, although I wish I had been able to be there for his wife. Just wanted you to know how much this particular piece meant to me. Karen Thompson
ReplyDeleteKaren- Good to hear from you. It is so hard to know what the right thing to do for those with dementia. I'm suspect your old boss showed some signs of not being his usual self early on before anyone realized he had Alzheimer's. Now that my friend has been diagnosed I see that she actually showed some signs of confusion and frustration in her early 40's but I didn't recognize it at the time. Thank you very much for your comments.
ReplyDeleteThank you Chris, that inspired and helped me a lot. God bless you. Julie
ReplyDeleteThank you, Julie, for your comment. I wish you well.
DeleteChris, thank you! I have spent most of today with a friend who is 95 years old and has been showing the beginnings of Alzheimer's and the last six or eight months. Today's project was finding a purse in the house, and convincing her that no one broke in and took it. I am also close to one of her daughters, the one who lives up here and deals with this on a daily basis. There's another daughter that lives 1500 miles away, who does not see things the same way. Case in point, when that daughter was visiting last month, she arranged to have all the locks changed on the house. This is a painful situation for all of us that are close to it. I logged on today looking for the patron saint of dementia, and your blog came up. Thank you again!
ReplyDeleteThank you. You had wonderful advice.
ReplyDeleteSo on target
ReplyDeleteJust found this as I googled “patron saint of those with dementia”. My dad has just been diagnosed with Lewy Body Dementia and I am at a loss especially since he is isolated in assisted living. I know this was written a while back but thank you!
ReplyDeleteMy dad was diagnosed with Alzheimer's diseases this neuron disease started 25 years before being revealed it was triggered the moment we started eating sugars including any and almost all carbs that break down to glycerol,and he was placed on the best medical treatment approved by united states,(FDA) he has been taking Cholinesterase,Memantine to treat his memory loss,confusion and the problems with his thinking and reasoning.just to help slow the progression and manage the symptoms,as no cure exists I read through with interest. I once believed Alzheimer disease has no cure. Well it is true with English medicine, but not with herbal medicine. My Dad's experience opened my eyes to the reality of a cure through herbs. My Father was a vibrant man before his encounter with Alzheimer. He was a scientist, hence his mental capability was never in doubt. In 2013, he was diagnosed with Alzheimer. The symptoms manifested through repeating conversation and gradually forgetting things. It became progressive from finding the right words during conversation, to significant confusion and forgetting details about himself. It was not a good experience, seeing your father whose brilliance had no match, totally became a shadow of himself. His doctors said the disease has no cure, just medications for treatment which had a lot of side effects were administered to him. Early 2016, while on the internet, I bumped into a story of Alzheimer, and I read about a cure through herbs with interest. I researched more to be sure it was not a hoax. In my quest, Doctor James herbal mix medicine was mentioned in the testimony. I contacted him on his email that was provided (drjamesherbalmix@gmail.com) and I got his herbal mix medicine for my father.He told me that his herbal mix medicine will help my Dad to reduce the abnormal protein fold inside his neurons,and regulate the nutrients and molecules in his body system,and as well stop the progressive disorder that build up in damaging his brain cells,and help his weak cells that causes brain shrinking to function well,it's a good herbal drinks for cell repairing.This doctor James is super great man and his herbal mix medicine is wonderful and works effectively as he said,with no side effects. It's been 4 years and my Dad is perfectly okay and back to his laboratory work even at old age. For your loved ones with Alzheimer or Dementia, take them off English medicine and use Dr. James herbal mix medicine for treatment. if you have any kinds of health challenges or diseases such as..Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer ,Epilepsy Dupuytren's disease ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Sclerosis,Fibromyalgia,Fluoroquinolone Toxicity
ReplyDeleteSyndrome Fibrodysplasia Ossificans ProgresS sclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis,Lupus,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Lyme Disease,Blood Cancer,Brain Cancer,Breast Cancer,Lung Cancer,Kidney Cancer, HIV/AIDS, Herpes Virus,Hepatitis B, Liver Inflammatory,Diabetes,Fibroid. just reach him on his Email [drjamesherbalmix@gmail.com]. and get your permanent cure.he's a good man and he will help you.